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People with learning disabilities generally develop dementia at a younger age, and this is particularly the case for people with Down’s Syndrome.
When people with Down’s syndrome develop dementia, it is usually due to Alzheimer’s disease. Studies have estimated that 1 in 50 people with Down’s syndrome develop dementia in their 30s, rising sharply to more than half of those who live to 60 or over. (Alzheimer’s Society)
At Centre 404, we have supported a number of service users who went on to develop dementia. Through our work with these individuals, we have gained valuable experience and lessons in best practices and steps that are needed to ensure a better quality of life for a person with learning disabilities who goes on to develop dementia.
Due to a person’s learning disability, getting an accurate diagnosis of dementia and ruling out any other factors can be a challenge. We have good experience in ensuring that we advocate on behalf of a person to get an accurate diagnosis as well as the support that will be required following the appropriate diagnosis.
Advocating for the person to continue to live in their natural home environment for as long as possible while making reasonable adjustments
Supporting the person in eating and drinking well
Supporting them with their health appointments, including optician, dentist, and hearing appointments
Working closely with social services as well as the wider multidisciplinary team to get the appropriate support based on changing support needs
Helping the person remain in their usual routine and carry on with activities they enjoy
Supporting them to spend time together with their loved ones
If you are interested in finding out more information, please contact
Centre 404 staff collaborated with health professionals and his family to stabilise his health, drastically reducing hospital visits and infections. Over the past year, Richard has benefited from the consistent support of well-trained staff at Centre 404.
As her condition progressed, she continued to inspire those around her. With the support of Centre 404, Dora participated twice in the Alzheimer’s Society’s annual Memory Walk, proudly raising funds and awareness for others living with dementia.